Wednesday 28 November 2018

GOSH Birthmark update

Last week Harry had his second appointment at GOSH regarding his birthmark. They first time we visited he was only 3 months old, and only weighed 8lbs! We had no idea what they were going to do at the appointment. 2 years ago the doctor gave us a couple of sheets of paper about laser surgery, explaining they'd do a test patch and we needed to take an unscented cream with us. Luckily we have been trialling Eucerin Aquaphor Soothing Skin Balm, and it's been in my handbag as a one for all wonder cream. It literally does everything from lips to baby bums. 

Gavin had suggested that she might have given us the paperwork because they would be doing the test patch that day. It completely threw me as it's not what I mentally prepared myself for. Of course because their was such uncertainty, I barely slept the night before, and had a very tearful morning. 

It turns out that I had got myself in a state for nothing. She literally compared the photographs they took before, with what it looked like now. 

The next steps...
We will be sent an appointment for April/May time for a test patch to be completed. We then have to return for them to review the results. Then he will be booked in for the surgeries under general anaesthetic. He will be required to have four surgeries over 18 months. 

Last time the doctor was pretty forceful with Gav and I, and basically bulldozed her "why wouldn't you" opinion on us.  This time she was really wishy washy, and implied that Gav and I had pushed the matter previously. Which totally wasn't the case, as I was in such denial that it would go on its own. 

It's one of those horrible situations where if we don't do it, he will moan that we didn't do something when her was younger, and if we do go ahead he will think we didn't think he was beautiful with it. I must make it clear, that it's not for aesthetic appearance. There is a risk that when Harry gets older his birthmark could form a 'cobblestone' effect, which means it becomes uneven and they bleed. 

We have asked to go ahead with the patch test (rightly or wrongly), and take it from there.

I've had a few parents come across my previous post message me. I'd love some reassurance that we're doing the right thing. 

Thank you for reading,